A Facebook friend of mine posted a link to this open letter from endometriosis sufferers which says far better than I ever can what it's like to be one of us, afflicted with this terrible, incurable disease. I'm lucky: I've had 4 years pain-free because of a successful treatment option that is now no longer successful. Before that: hell on earth. Now: skirting around the edges of hell again and quite frankly terrified at how bad it could become. And even more frightened that I may have genetically passed on this hideous disease to my daughter.
Please follow the link and read it. I can't copy it because it's copyrighted, but everything in there is something I have said, one way or another, over the last 20 years or so.